Adult Siblings

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This essay will critically analyse the article by Atkin and Tozer, ‘Personalisation, family relationships and autism: conceptualisation of the role of adult siblings’ from the Journal of Social Work. I chose this article because I have worked with an autistic young person and I wanted to expand my knowledge of autism further. The essay will focus on three areas; the research methodologies, the findings and how this will impact on social work policy and practice.
Nearly 20 years ago (Twigg & Atkin, 1994), noticed how little was known about the caring roles of adult siblings, observing that their contribution was often overlooked by policy. Little has changed since then…’ (Conway & Mayer. In Atkin & Tozer, 2014:226).
The concept of personalisation …show more content…
(Atkin and Tozer, 2014). The research was ethically approved by The Human Research Ethics and Governance Committee of York University. Because the research intended to interview people with severe autism plus a learning disability gaining informed consent would have been vital. On informed consent McLaughlin asks, ‘How informed is the informed?’ (2007:59). Therefore the article is missing crucial information about the methods in which the researchers gained ethical consent. The study was cross sectional and used semi structured interviews to generate qualitative data. The authors clearly state their choice of qualitative research methodology because ‘it is… effective in exploring complex, sensitive and potentially contested themes.’ (Atkin and Tozer, 2014:227). Twenty one adult siblings, twelve of their siblings and also twelve health and social care professionals were …show more content…
It seemed a matter of fact situation but one which should be their responsibility and their “right” to follow their own life course is one which professionals might need to encourage (2004:127).
This emphasises the need for social work practice and policy to understand the needs and rights of siblings. There is an inherent danger that by expanding the choices of a service user you may be disregarding the choices of their sibling.

Atkin and Tozer (2014) found that siblings felt there was a lack of interest from social care professionals. This notion is supported by Attfield and Morgan who put together some desires of families with an autistic son/daughter including acceptance, equal partnership and tolerance (2012). In the shift towards personalisation family relationships should be routinely considered when assessing a service user. According to the Department of Health, personalisation is defined as,
‘The way in which services are tailored to meet the needs and preferences of citizens. (Department of Health in Sims and Gulyurtlu, 2014:14).
Therefore in order for the service user take an active role in planning their care, it is imperative that practitioners recognise the assertions that personalisation is based upon. Needham
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