Early Intervention Case Study

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Fed up disability carers are calling for action as the National Disability Insurance Scheme’s delayed funding leaves their newly graduated teens in limbo. Carers have been left without adequate funding to transition their children to support services, forcing many to leave their jobs in order to pursue full time care. Many families are now left desperate and uncertain of what lies ahead for their children in the coming year.

The NDIS states that those eligible are legally entitled to funding plans for all ‘necessary and reasonable’ support. By personalising their support system, they believe, provides families with greater choice and control over their services. Though for many parents this is simply not the case as their funding is pushed
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The NDIS has definitely created more focus on the kids that need this but the adults that are now switching over are being pushed aside,” said Mrs Bailey.

Mrs Bailey’s son’s delayed funding has resulted in him being unable to attend usual services that provide weekend excursions with his friends. It also prevents him from transitioning to support service Thorndale in the New Year.

“They’ve had to say “no new plan no new service agreement,” and we can’t blame them because there’s so many kids with expired funds that they can’t even pay their staff – but how do I explain that to my son?”

The 40,000 member strong Facebook group ‘NDIS Grassroots Discussion’ is a page that has been created by carers to discuss their own questions, experiences and concerns about the scheme.

A collection of posts have been made regarding issues like Mrs Baileys, many coming forward to admit that they are relying on schools or support agencies to let their children attend out of the goodness of their hearts, even with frozen