1/2 compare the experience of dementia for an individual who has acquired it as an older person with the experience of an individual who has acquired it as a younger person. They both may be frustrated as they carnt do the things they found easy to do. They may not be very different, the older person will have more experience than the younger one, but it will still affect them. Feeling they have to rely on others and in security may be hard to accept, they may already have help due to other medical problems, so will be used to having help.
Dealing with a learning disability: Dementia generally affects people with learning disabilities in similar ways to people without a learning disability, but there are some important differences. People with a learning disability are at greater risk of developing dedementia at a younger age - particularly those with Down's syndrome. They will require specific support to understand the changes they are experiencing, and to access appropriate services after diagnosis and as dementia progresses. Those with a learning disability are also less likely to receive an early or even correct diagnosis of dementia and may not even be able to understand the diagnosis because of their current condition. Some advantages show that they may already be in some sort of care to support with their learning disabilities, so a change to environment may always not be necessary. Being as having dementia affects the way in which you communicate; a person with learning disabilities may have already figured a different way to communicate out (e.g. more non verbal communication if their disability affects their speech)
For those within ethnic minority groups in the UK who develop dementia there may be little awareness or understanding of dementia. Some communities do not even have a word for dementia, or may refer to it as 'madness'. Prejudice, shame and fear attached to the symptoms may cause people to hide it or 'keep it in the family'. For some individuals it may mean they experience triple discrimination when seeking help - ethnicity, age and dementia. There is a need for those who provide services to understand cultural differences and their implications including people's perception of dementia. There are several examples of good practice which can be followed
End of life care for people with dementia is a complex area which needs greater understanding if we are to improve the care people receive towards the end of their lives Living with dementia is a common experience as more of us live to an advanced age. Individuals living with dementia will die with the disease and towards the end of life many will require the support of a care home.
1.4 As a carer, you are likely to experience a range of very different, and often quite extreme, feelings. This is particularly difficult because, as dementia gradually causes the person’s abilities and personality to change, the nature of relationships will also change. There is no simple way to deal with these feelings, but it may help to understand that the complex and changeable emotions you feel are completely normal may help.
Some feelings commonly experienced by carers of people with dementia include distress, frustration, guilt, grief and loss, exhaustion, annoyance, frustration and anger. It is quite common to feel guilty. This may include feeling guilty for the way the person with dementia was treated in the past, guilty at feeling embarrassment from the person’s odd behaviour,